Monday, April 19, 2010

Mayo Clinic Day 5

Mayo Clinic Day 5
Monday, April 19, 2010

We got up and ready early today for Landon's 6:45am sedated EMG at Saint Mary's Hospital.  Landon was weighed and checked in by 7am.  We then met with the RT to look over Landon's vent and his setting, apparently it is so new the Mayo has not used the machine they have only heard about it.  Next to visit his pre-op room was 2 different Anesthesiologist who checked Landon out completely and then gave him some med via Mic-Key to help them start his IV.  The TV in the waiting room informed families exactly what time and location of the patient, in OR 8:31; procedure starts 8:51; procedure done 10:41; exit OR 10:54; Recovery Room 10:59.  Landon did well recovering from being put under and the EMG and we were out of the hospital just before noon.

Landon's next appointment was back at the Mayo building a 1pm, they do give tight busy schedules around here.  We met with Dr. Selcen a neurologist who works with CMS kids,  she wants to take Landon of the Mestinon (Pyridostigmine Bromide) medication.  She does not think Landon has CMS because his EMG results have improved from the last test he had at 7 weeks old.  She has made a few suggestions that she thinks Landon could possibly have but she is not sure.  So on to more blood work and a urine sample, in a infant really not the easiest thing to tape on to a baby.

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