Who schedules kids appointments at 7:15AM, well the Mayo does. We actually made it right on schedule to meet with a Family History Geneticist this am and wow do they pick your brain for all family medical history related to muscle issues or not. Landon's 8am appt was with a different geneticist who is cross trained in neurology, she was very interested in Landon's history. She was able to make a phone call to the lab in Wisconsin that ran Landon's CMS blood panel and asked them to test 2 different genes that have just been added to the CMS panel in the last month. Wow technology is changing daily, but I am sure it will still take them 6 weeks to get the results back.
We left floor 7 and went up to floor 9 for Landon's next scheduled appt at 10:30am. That Dr was running late in the OR so it was rescheduled for 3:30pm, so now we have time for a long lunch and will be able to charge Landon's machines. After lunch we traveled back up to the 16 floor and waited for our neurological consultation. Dr. Mack the neurologist thinks we are on the right track and scheduled us with Dr. Selcen a neurologist who works very closely with Dr. Engle and CMS kids. We then needed to have Landon's blood drawn, every time we have had blood drawn they say he his a hard stick and they are not kidding. Over a hour and 3 sticks later we were done, poor baby.We then took Landon back to floor 9 to meet with a Gastroenteritis. She thinks Landon is doing very well with his Mic-Key and Fundo, and as long as everything functions well he should be good to start on foods!
What a long day, we are all done for now!
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