Tuesday, July 27, 2010
Wednesday, June 23, 2010
Tuesday, June 22, 2010
Friday, April 23, 2010
Mayo Clinic Day 8
Thursday, April 22, 2010
Landon did great thru the night and is doing very well after his trach surgery, he will now be attached to the EEG probes for the next 24 hour. He did ok with getting the leads glued on his head, he was not thrilled about us taking them off. The EEG showed no seizure activities and Landon was released from the PICU Friday morning.
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Landon did great thru the night and is doing very well after his trach surgery, he will now be attached to the EEG probes for the next 24 hour. He did ok with getting the leads glued on his head, he was not thrilled about us taking them off. The EEG showed no seizure activities and Landon was released from the PICU Friday morning.
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Wednesday, April 21, 2010
Mayo Clinic Day 7
Wednesday, April 21, 2010
The walk to Saint Mary's Hospital begins early today with a 7am check-in time for Landon's MRI. Mom changed out Landon's trach to a Shiley with no metal and Landon was on his way for a busy day. Landon's MRI started at 7:30 am and then moved over to the OR at 9:31am. Landon has granulation tissue above his trach site that needs to be removed to open up his air way. The procedure was a great success and Landon made his way up to the PICU to recover for the next 24 hours.
The walk to Saint Mary's Hospital begins early today with a 7am check-in time for Landon's MRI. Mom changed out Landon's trach to a Shiley with no metal and Landon was on his way for a busy day. Landon's MRI started at 7:30 am and then moved over to the OR at 9:31am. Landon has granulation tissue above his trach site that needs to be removed to open up his air way. The procedure was a great success and Landon made his way up to the PICU to recover for the next 24 hours. 
Tuesday, April 20, 2010
Mayo clinic Day 6
Tuesday, April 20, 2010
Sleep in day! With not giving mestinon every 4 hours it was a great night. Out 1st appointment today was with a Pediatric Urologist. All is good, Yeah!!! To lunch and the park on this great day!
Sleep in day! With not giving mestinon every 4 hours it was a great night. Out 1st appointment today was with a Pediatric Urologist. All is good, Yeah!!! To lunch and the park on this great day!
Monday, April 19, 2010
Mayo Clinic Day 5
Mayo Clinic Day 5
Monday, April 19, 2010
We got up and ready early today for Landon's 6:45am sedated EMG at Saint Mary's Hospital. Landon was weighed and checked in by 7am. We then met with the RT to look over Landon's vent and his setting, apparently it is so new the Mayo has not used the machine they have only heard about it. Next to visit his pre-op room was 2 different Anesthesiologist who checked Landon out completely and then gave him some med via Mic-Key to help them start his IV. The TV in the waiting room informed families exactly what time and location of the patient, in OR 8:31; procedure starts 8:51; procedure done 10:41; exit OR 10:54; Recovery Room 10:59. Landon did well recovering from being put under and the EMG and we were out of the hospital just before noon.
Landon's next appointment was back at the Mayo building a 1pm, they do give tight busy schedules around here. We met with Dr. Selcen a neurologist who works with CMS kids, she wants to take Landon of the Mestinon (Pyridostigmine Bromide) medication. She does not think Landon has CMS because his EMG results have improved from the last test he had at 7 weeks old. She has made a few suggestions that she thinks Landon could possibly have but she is not sure. So on to more blood work and a urine sample, in a infant really not the easiest thing to tape on to a baby.
Monday, April 19, 2010
We got up and ready early today for Landon's 6:45am sedated EMG at Saint Mary's Hospital. Landon was weighed and checked in by 7am. We then met with the RT to look over Landon's vent and his setting, apparently it is so new the Mayo has not used the machine they have only heard about it. Next to visit his pre-op room was 2 different Anesthesiologist who checked Landon out completely and then gave him some med via Mic-Key to help them start his IV. The TV in the waiting room informed families exactly what time and location of the patient, in OR 8:31; procedure starts 8:51; procedure done 10:41; exit OR 10:54; Recovery Room 10:59. Landon did well recovering from being put under and the EMG and we were out of the hospital just before noon.
Landon's next appointment was back at the Mayo building a 1pm, they do give tight busy schedules around here. We met with Dr. Selcen a neurologist who works with CMS kids, she wants to take Landon of the Mestinon (Pyridostigmine Bromide) medication. She does not think Landon has CMS because his EMG results have improved from the last test he had at 7 weeks old. She has made a few suggestions that she thinks Landon could possibly have but she is not sure. So on to more blood work and a urine sample, in a infant really not the easiest thing to tape on to a baby.
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